I don't know how I missed this and owe you guys an update. The biopsy came back 2-3 weeks after the surgery. He successfully removed the 3 suspect lymph nodes with one pushing 3 cm. All 3 came back positive for seminoma. He also removed 10 adjacent lymph nodes that came back negative which was great news. My next appointment was set for a 4 month followup.
I thought about updating but the superstitious side of me didn't want to jinx anything leading up to meeting with my surgical oncologist on May 7th. After meeting with him I learned that there were 2 spots on my CT scan, one he thought was fluid from the surgery and one other lymph node at 1cm he deemed suspicious. He ordered a PET scan to confirm since a biopsy in this area was too risky to get an approval.
I was lucky enough to get out on a guys trip to the Buffalo River for a 4 night float camping trip with the PET scan looming when I got back. As much as I had those negative thoughts intruding I still had a great time to get away from electronics, notifications , traffic,etc...if you haven't been on this river I highly recommend it in the late Spring time. Highs were in the mid 70s and lows in the mid 50s at night. The only stress on the trip was navigating DFW rush hour with 2 12 ft kayaks in the back of my truck.
After the much needed R&R I met with my doctors and confirmed that the "suspicious" lymph node but up like Clark Griswold's house on Christmas. Joy to the world, the cancer is there!
Within the following week I was setup to get my chest port installed/surgically implemented June 15th. Huge shout-out to Dr Oxner class of 97 who did my port placement at St. David's North Austin. I now feel like a cyborg with the quarter sized port under my collar bone with a catheter in my jugular. Took a few days to get used to but more familiar as the days pass.
I just started my chemo treatment /infusion this Monday. I am scheduled for 4 separate infusions 5 days on with 2 weeks off so should finish up by the end of summer. I am currently on day 3 and the only issue I have is nonstop hiccups, not sure if it is the anti nausea or the chemo. Hindsight I wouldn't change any of my decisions knowing another surgery would just be kicking the can down the road to chemo as it will come back since you can't retrieve microscopic cancer where chemo is 95% effective.
If you made it this far through my rambling then pecking on my phone which I am sure is full of typos but you get the jest. I'll leave you with a few photos of the mighty Buffalo .
On a side note, if anyone has any good tips on how to teach young toddlers (4 & 2)about cancer/chemo that would be helpful. My son gets really withdrawn and sad saying Dad I don't want you to lose your hair and beard,etc... The only thing that has worked so far is letting him cut my hair different every day this week so he feels like he is part of the process as the EP chemo will likely make me lose my hair in the first 7 to 10 days. So far he shaved a mullet...thinking Jon Shelby /peaky blinders next to a Mohawk on Friday and then bald cut by end of the weekend.
Also, if anyone knows how to get rid of the chemo/anti nausea hiccups...going on 72 hrs of reflux and hiccups with no breaks. My wife says welcome to being pregnant.
Made it through round 1 day 5 yesterday and I now get off until the 14th , hoping to feel better for the 4th and birthday on the tenth. The heartburn and involuntary diaphragm spasms have not let up from Tuesday into this morning. I am reading men are more succeptible to these side effects from the Cisplatin but it isn't very common. If this is as bad as it gets I am very grateful, any tips or advice would be helpful .
Just wrapped up day 10 of 20 and have reached the halfway point of my 4 x EP treatment. I am lucky that the heartburn meds my oncologist prescribed helped tremendously this round with little to no issues. Hoping that the second half goes as smoothly and F Cancer.
Just catching this thread. Rooting for you brother! Keep up the good fight.
I was diagnosed with testicular cancer in April 2021. Had a ultrasound at a work physical on a Thursday, appt with urology Friday, 5am surgery Tuesday. It was a complete surprise. No pain or discomfort at all, although I wasn't doing any self checking. I got lucky enough that is was stage 1 and hadn't spread so I dodged all the chemo/radiation. I'm currently on the watch and see plan now with yearly CTs to make sure it stays away.